Less than an hour after a small bushfire erupted near her mom’s house on Jan. 9, junior Neve D.*, who lives in Los Angeles, decided to evacuate to her dad’s house on the other side of the city. She...
A few years ago, I was hospitalized due to an eye disease. I was young and scared and didn’t know what was going on. During this time of turmoil, I found solace in my daily visits from Art With a Heart in Healthcare (AWAHIH) volunteers. They brought...
This October, I was honored to receive a student scholarship to attend the 2024 NORD Breakthrough Summit. The National Organization for Rare Disorders (NORD) aims to benefit the rare disease community through patient advocacy, working with pharmaceutical companies to develop treatments and drugs and pushing policies vital for rare disease patients and their overall care.
